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SSBMT Registry

Tracking haematopoietic stem cell transplantation and disease outcomes across the Kingdom of Saudi Arabia.

Our Registries

Saudi Blood and Marrow Transplantation Registry

This will be observational disease registry study. The data will be collected retrospectively for patients transplanted prior to the starting time of this study/registry. After launching of this study/registry all data for patients to be transplanted also will be collected prospectively. Upon entry into the study each patient will be followed prospectively for a period of 5 years or until patient's death whichever occurs first.

All patients who underwent or will undergo stem cells transplant will be enrolled in this registry. The aim of this study is to establish a Saudi Blood and Marrow Transplantation Registry (SBMTR) patient registry to gather data on patient characteristics, clinical presentations, sub types, staging, prognostic factors, genetic make-up, treatment patterns, and short and long term outcomes specific to the Saudi Arabian population.

Disease Registry for Myeloproliferative Neoplasm

This is a longitudinal, observational study on the presentation, diagnosis, treatment, prognostic factors, routine clinical management and outcome of patients diagnosed with Myeloproliferative neoplasms (MPN) in Saudi Arabia.

All patients diagnosed with MPN (Polycythemia Vera (PV), Essential Thrombocytopenia (ET), Myelofibrosis (MF), Post-Essential Thrombocytopenia Myelofibrosis, Post Polycythemia Vera Myelofibrosis) as documented in the medical chart at the time of opening of the registry at the specific site will be included.

Lymphoproliferative Disorder

This is a descriptive, observational, multicenter disease registry on the presentation, diagnosis, treatment, prognostic factors, routine clinical management and outcome of patients diagnosed with lymphoproliferative disorder in Saudi Arabia.

All patients diagnosed with LPD (Non-Hodgkin's Lymphoma, Hodgkin's Lymphoma, Chronic Lymphocytic Leukemia, Small Lymphocytic Lymphoma) as documented in the medical chart at the time of opening of the registry at the specific site will be included.

Chronic Myelogenous Leukemia Registry

This is a descriptive, observational study on the presentation, diagnosis, treatment, prognostic factors, routine clinical management and outcome of patients diagnosed with Chronic Myelogenous Leukemia (CML) in Saudi Arabia.

All patients diagnosed with CML as documented in the medical chart at the time of opening of the registry at the specific site will be included.

Participate in a Registry

SSBMT registries are open to all accredited transplant and haematology centres across Saudi Arabia. Contact the Registry Committee to enrol your centre or request data submission guidelines.

Contact Registry Committee
Data & Privacy

All registry data is de-identified and managed in accordance with the Saudi Data & Artificial Intelligence Authority (SDAIA) regulations and institutional ethics committee approvals.

Registry Scope
  • Stem Cell Transplantation
  • Myeloproliferative Neoplasms
  • Lymphoproliferative Disorders
  • Chronic Myelogenous Leukemia